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A NEUROPALLIATIVE REHABILITATION APPROACH TO PRESERVE THE QUALITY OF LIFE IN PATIENTS WITH AN ADVANCED STAGE OF SELECTED NEUROLOGICAL DISEASES
Project Id17-29447A
Main solverdoc. PhDr. Radka Bužgová, Ph.D.
Period4/2017 - 12/2020
ProviderÚstav ošetřov. a porodní asistence, GP Min. zdravotnictví
Statesolved
AnotationThe main aim of the project is to create and verify a concept of neuropalliative and rehabilitative care for patients with selected neurological diseases in an advanced stage of the disease. Further, to evaluate bio-psychosocial and spiritual needs of these patients and their carers in relation to the QoL using created standardized tools. The aims of the project will be met by the triangulation of research methods. A new concept of care and assessment tools will be developed by analyzing interviews and focus groups. Qualitative data will be analyzed using grounded theory. The concept of care will be tested in the context of the intervention study. Using quantitative analysis we will assess the effect of an intervention provided on the saturation of needs, QoL and quality of care. A research sample will be made up of the patients with selected neurological diseases (multiple sclerosis, neurodegenerative and motor neurone disease), together with patients´ family members. Based on the results educational materials and a certified course for health care professionals will be created. The project aims to develop and verify a concept of neuropalliative and rehabilitative care for patients with selected neurological diseases in advanced stage of the disease. Further, to evaluate complex needs of these patients and their carers in relation to the QoL using created assessment tools.
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